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star gaze lily

 

Good luck Mike, as Lorraine said we are all with you, bit squashed but there anyway Best wishes and hugs xx

Orchid Lady

Hi Mike, I've seen you on another post so know you're about  I just wondered how you got on today for your scan....not being nosey and hope you don't mind me asking, I've been thinking about you.

Dovefromabove

Glad to see you're home and posting Mike  

Hope today's ordeal wasn't too grim ((hugs))

Secret Squirrel

Hi Mike, thinking of you buddy, here is a joke to cheer you up.

Do you know it is a fact that only one in seven dwarfs is Happy

Keep us all posted with things.

star gaze lily

Hi, Mike, hope all went well today. Thank you for looking up my problem plant/weed. 

Take care thinking of you best wishes Lily x

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Orchid Lady

Good to hear from you Mike and also good to say that I know something you didn't  Ha ha, whoever would have thought that?? I knew about the iodine, strawberries,fish connection, I learnt it when I had my tonsils out aged 21 and they asked me the same question 

I'm off to bed in a minute, shattered and no doubt you are too.  Sleep well now today is over and catch up tomorrow x

Dovefromabove

It's good to hear from you Mike - I'm glad yesterday wasn't too bad and that your daughter is accompanying and supporting you - she sounds lovely 

I love your wife's name - my daughter's second name is Rose, and by complete coincidence so is her lovely step-daughter's - how's that for Serendipity 

Fairygirl

Lovely to hear your post Mike and glad it all went well. This forum is full of great people who will give support whenever you need it. We're the best kind of family - we don't turn up unannounced and eat all your food, we won't ask for a loan, and we won't phone you just when you've just settled in a comfy chair after a busy day 

star gaze lily

Too true, Fairy lol 

Hope you're feeling ok today Mike 

MrsGarden

Hi Mike, hope youre not feeling down today, remember you have lots of friends here holding your hand and wishing you well. Take care.

Clarington

Morning Mike. Did you manage any sleep last night?

I really don't know much about bladder cancer I'm afraid but I know we've a few ex doctor types on here who might be able to explain things to you if they're about today. When you see your GP can you ask them to explain whst is going on? Or for facts and "what normally happens" what about calling the Macmillian Nurses? They're open 09:00 - 20:00 and their number is 0800 808 0000. I know they were a cracking bunch when my grandmother was dying and might be able to give you advice in what to ask / demand from the doctors so that when you next go you can put your foot down and get some proper time for them to explain it all to you.

I'm really sorry to hear your trip was so traumatic. When I was having blood tests earlier this month the nurse (who turned me into a proper pin cushion) told me that before I next have blood tests to drink as much as I possibly can (alas water not whiskey) as it helps making taking blood easier.

Bal

Hi mike have only just seen your post. I am so sorry to hear your news. I wish I could magic it away for you. I am a radiographer by training but have worked for medical companies for the last 20 years. I have spent every working day for the last 40 years in some hospital or other, and have seen a terrible decline in the attitude of staff. But there are still people who care in the hospitals. I know it's hard sometimes but my advice is to demand that someone sits down and talks to you. Hospitals are so worried about there image nowadays (more it seems to me than the standard of care) I know that MDT (multidisciplinary  meetings) are the norm these days so even if it seems like the right hand doesn't know what the left is doing, it's not necessarily true. My advice to you is be determined and firm. Hospitals are so afraid of complaints nowadays that the will listen if you make a fuss. I will be thinking of you x

Bal

p.s. I really cannot recommend the Macmillan nurses enough, give them a ring, they can really help both practically and emotionally. They were fantastic when my dad was ill. x

nutcutlet

Mike, don't forget the Samaritans. 24 hours a day and ready to listen to you. 

You don't have to be suicidal to call them. Some people think you do but although the question will be asked a Samaritan will be pleased to hear that a caller is not suicidal. 

 

Orchid Lady

Hi Mike, sounds like you where having a very down night last night and sorry to read how distressing Saturday and indeed this whole situation is for you.  We are all still here listening and holding your hand virtually.  I can't offer any advice on your diagnosis or treatment as I am not qualified.......I only have eyes to read and 'listen' to you I'm afraid xx

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Victoria Sponge

Hi Mike,

I've been reading through your posts and I also read your posts on the other forum although I never registered on it.

I kind of understand the dilemma you are in and wanted to say so, although I cannot offer any advice.

My mother died two years ago after being diagnosed with cancer of the oesophagus and liver and as is often the case with cancer sufferers, she didn't seem to get ill until she started the treatment.  She had bad reactions after only two sessions of different chemo and the second left her hospitalised until the end, a couple of weeks later.

There was a horrible moment when I took her for her second chemo session and the nurse mentioned palliative care and my mother questioned it, and I thought how is it at this stage before the question was asked! I know I'd asked her about it because it seemed like an important elephant in the room, but often people don't like to talk about it out of embarrassment.

The point I want to make is the same as Clarington and Bal have already said: it's important to know the facts so an informed decision can be made. I never attended any of my mothers appointments when she got test results so I only ever got passed-on information and I'm not sure how much she took in, in hindsight.

Anyway, the whole thing left me thinking that if the same thing happened to me and I asked the right questions, I might not accept any treatment. But you have to judge your case on its own merits.

I hope I haven't made anyone uncomfortable with my remarks, I admit I'm more of a facts person than a bedside person and on many occasions this has not been helpful, but sometimes it's good to talk truths, and please know it is kindly meant.

Vic 

 

Dovefromabove

Mike ((hugs))   I've been away and just had a brief read of your recent post.  I hope it will help if I tell you that several years ago I knew a chap who had what sounds like the same type of bladder cancer that you have - he had the same 'up the spout' inspections that you've had - the treatment was done the same way with lasers - he would have a day off work for the treatment and go back to work the next day - he was a builder doing strenuous work.  He would have a regular 'inspection' once every 12 months and if anything needed zapping it would be zapped with a laser there and then.  He fathered the third of his three children after starting receiving this treatment.  He died some 25 years later in his 70s of a severe stroke.  

I remember him telling me that the most painful thing of any of the treatment was the injections - the rest he regarded as a day off work   I would add that he was an active allotmenteer!!!

I hope that gives you a degree of reassurance - remember we're all 'rooting' for you - rooting, get it???  That's a joke that is ((hugs))

pansyface

There must be a consultant at the hospital where you went. It is normal for this person to explain any operations to you. There is usually a special nurse whose job it is to talk to patients before their treatment. Don't be backward about coming forward. Go to your GP and ask to be referred to the consultant or hospital nurse for a chat.

All the very best.

Busy Bee2

The NHS is in a mess at the moment.  Everyone does a bit of the job, but not all of it.  Everyone thinks someone else will have told you what you need to know.  Nobody can keep up.  When you are in distress, sometimes sticking needles into veins and arteries doesn't go so well.  Nobody has ever taken blood from me or stuck needles in me and had a problem - except for the very sad time when I was in hospital having to give birth to a 20 week baby who had died in the womb.  The doctors were trying to insert a cannula.  It got more and more painful, and I felt increasingly stressed and like, as you say, a pin cushion.  The doctor got more stressed.  I was in agony and inner turmoil, because it was the most horrid time.  The doctors throughout the whole process changed shifts, the least experienced get the night shift, but it is in the night, when things aren't going too well, that the patients are most vulnerable.  I am sorry that your experience was frightening and distressing and badly organised.  I can understand how you felt. 

Unless they have told you otherwise, your bladder cancer may not be life threatening, and (ironically) it may be for that reason, that they aren't taking greater care of your emotional needs.  But it would be better if they had made that clear.  When my dad had it, no MacMillan nurse was sourced, and because we changed authorities halfway through the treatment, that was partly our fault.  But I found out what I could, and asked the relevant questions, so we did know what was going on and why.  I think your operation date sounds good - they are not wasting time - it will not be fast growing, so May 12th is a good date.  Like I said to you before, I don't think you should worry about it being agonising and coming to nothing, because it wasn't like that for my dad (who had a very low pain/discomfort threshold) but got through it, despite the fact that in the middle of his treatment - between the operation and the radiotherapy, my poor mum died of a stroke - and he too had had a very close bond with her - they were married for 57 years.  There really is a very good chance of a full recovery with bladder cancer. 

My mum had a mitral valve replaced in her fifties, after a small hole made by rheumatic fever as a child, and I remember that she just submitted absolutely to the treatment she was given.  She trusted the doctors completely, and kind of zoned out, and it helped her get through.  But it is not an easy thing to do.  She had good reason to trust the guy who operated on her, because he operated on Princess Margaret a couple of years later, so we thought it amazing that she got, on the NHS, the surgeon chosen to operate on a member of the royal family.  But anyway, she got better, and had another 26 years of life as a result of that operation.  I try to trust on medical things where I can, just because I think it helps you get through, but at the same time, stay alert to what they are doing and why. 

My name is Valerie.  Only my parents called me 'Val' though, and a few select others.  Mainly I am Valerie nowadays, because I miss them so much xx

Bal

Oh Mike my heart goes out to you. I to have taken comfort from my faith, but sometimes you just want to scream Why! all I can say is keep hold of your faith, there is a reason for every thing, we just can't see the bigger picture from where we stand. There are so many thoughts and prayers for you and yours rushing towards you right now.x