Posted: 25/10/2013 at 08:03
Fg - I've really loved this job - I still do - I have met some amazing people and it's been a real privilege to know and support them. However, over the years I've lost several of 'my' children. I know we're not supposed to get emotionally involved, but of course we do. We work with them and their families long term - we couldn't do the work if we didn't care. I have sat with a mother by a hospital bed and watched and waited while her her 14 year old passed, and cried with her and his lttle brother. Many parents of children with disabilities can be quite isolated socially, and sadly some are isolated from wider family too. This mum had no one else to sit with her and I'd known her and her son since he was 3, so she asked for me. What else could I do?
There have been other times of huge sadness, but also times of huge joy. The phone call from the mother of a 10 year old with severe autism and learning and communication disabilties whose child had called her 'Mum' for the first time will stay with me for ever.
But I'm getting to the age when I'm beginning to lose friends too, and the sadness I feel at their passing is begining to bring back sad occasions with 'my children' too, so I think it really is time to leave.