Posted: 15/04/2016 at 23:12
You are all correct in what you say, but Devon and Cornwall are a different breed I think.
The carers are just not available, when I was disparate with mum, I offered to pay any amount of money and was told if I offered 100.00 per hours, I wouldn't get anyone, they just are not here.
Macmillan only deal with cancer patients, but they never came near with mum.
All the care was temporary, never got a Care Package put in place.
This is the best of the two, the Marie Curie nurses will be regular. I don't think I will get a night sit though, but now he's stable and relaxed, I can get some sleep, I can probably handle him better if he's floppy.
We did get the bed two weeks ago and a commode.
I can handle it all just as long as he isn't stressed like he has been this past two days and nights, he's lovely now though, so I am going to try and get some sleep.
I really do appreciate all of you comments and good wishes.
Fishy wrote me the most beautiful poem, just perfect for the situation, I will ask him if I can put it on the forum.